Source Book in Bioethics

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640 pp., 8.5 x 11
Paperback
ISBN: 9780878406852 (0878406859)


September 1999
LC: 97-41521

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Table of Contents
Reviews


Source Book in Bioethics
A Documentary History
Albert R. Jonsen, Robert M. Veatch, and LeRoy Walters, Editors

Selected as an Outstanding Academic Book by Choice magazine Congratulations to Robert M. Veatch, 2008 recipient of the American Society of Bioethics and the Humanities Lifetime Achievment Award.

Government agencies and commissions, courts, and legislatures have during the past several decades produced reports, rendered decisions, and passed laws that have both defined the fundamental issues in the field of bioethics and established ways of managing them in our society. Providing a history of these key bioethical decisions, this Source Book in Bioethics is the first and only comprehensive collection of the critical public documents in biomedical ethics, including many hard-to-find or out-of-print materials.

Covering the period from 1947 to 1995, this volume brings together core legislative documents, court briefs, and reports by professional organizations, public bodies, and governments around the world. Sections on human experimentation, care of the terminally ill, genetics, human reproduction, and emerging areas in bioethics include such pivotal works as "The Nuremberg Code," "The Tuskegee Report," and "In the Matter of Baby M," as well less readily available documents as "The Declaration of Inuyama," the Council for International Organizations of Medical Sciences statement on genetic engineering, and "The Warnock Committee Report" on reproductive technologies from the United Kingdom. Three eminent scholars in the field provide brief introductions to each document explaining the significance of these classic sources.

This historical volume will be a standard text for courses in bioethics, health policy, and death and dying, and a primary reference for anyone interested in this increasingly relevant field.


Albert R. Jonsen is a professor of ethics in medicine and chairman of the Department of Medical History and Ethics at the University of Washington School of Medicine.

Robert M. Veatch is professor of medical ethics and former director of the Kennedy Institute of Ethics at Georgetown University.

LeRoy Walters is Joseph P. Kennedy Professor of Christian Ethics at the Kennedy Institute of Ethics.
Reviews
"In the past few decades, governments at all levels have developed a host of policies and laws that have framed the dialogue, concepts, and practice of making correct decisions on bioethical questions. Many of these documents vital to the field of bioethics are difficult to find, but this book provides easy access to the classics in the field.… A very valuable resource."—Choice



"This is a 'must have' for the reference shelf."—E-Streams



"An invaluable source book for, among others, ethicists, students, health law attorneys, researchers, health care professionals, and ethics committee members."— , Bioethics Forum

Table of Contents
Preface

Introduction


The Ethics of Research with Human Subjects


A Short History
Albert R. Jonsen

The Nuremburg Code

Declaration of Helsinki: Recommendations Guiding Medical Doctors in Biomedical Research Involving Human Subjects

On the Protection of Human Subjects: U.S. Department of Health, Education and Welfare's Institutional Guide

The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research: National Commission

Research on the Fetus: National Commission

Research Involving Children: National Commission

Insitutional Review Boards: National Commission

Federal Regulations Regarding the Protection of Human Subjects of Research

Final Report of the Tuskegee Syphilis Study Ad Hoc Advisory Panel

Research on In Vitro Fertilization: Ethics Advisory Board DHEW

Human Fetal Tissue Transplantation Research Panel: National Institutes of Health


The Ethics of Death and Dying

Changing Attitudes Toward Death and Medicine
Robert M. Veatch

Defining Death: Medical Legal, and Ethical Issues in the Definition of Death: President's Commission

In the Matter of Karen Quinlan: The Supreme Court, State of New Jersey

The California Natural Death Act: State of California

Superintendent of Belchertown State School v. Saikewicz

Deciding to Forego Life-Sustaining Treatment: Ethical, Medical, and Legal Issues in Treatment Decisions: President's Commission

In the Matter of Claire Conroy: The Supreme Court, State of New Jersey

Cruzan v. Director, Missouri Department of Health: U.S. Supreme Court

Child Abuse and Neglect Prevention and Treatment: Final Rule in the Matter of Baby K


Ethical Issues in Human Genetics

Issues in Genetics
LeRoy Walters

Genetic Screening: Programs, Principles, and Research

Screening and Counseling for Genetic Conditions: President's Commission

Assessing Genetic Risks: Implications for Health and Social Policy: Institute of Medicine

Recommendation 934: On Genetic Engineering: Council of Europe

Splicing Life: The Social and Ethicla Issues of Genetic Engineering with Human Beings: President's Commission

NIH "Points to Consider" for Gene Therapy Researchers

Gene Therapy for Human Patients: Information for the General Public

Gene Therapy in Man: Recommendations of European Medical Research Councils

The Declaration of Inuyama: CIOMS

Mapping and Sequencing the Human Genome: National Academy of Sciences

Mapping Our Genes: The Genome Projects - How Big, How Fast?: Office of Technology Assessment


Ethical Issues Arising from Human Reproductive Technologies and Arrangements

Reading on Human Reproduction: Introduction
LeRoy Walters

HEW Support of Research Involving In Vitro Fertilization - First Interim Report of the Waller Committee, Victoria, Austrailia

Report of the Committee of Inquiry into Human Fertilisation and Embryology: The Warnock Committee, United Kingdom

Ethical Considerations of the New Reproductive Technologies: American Fertility Society

Instruction on Respect for Human Life: The Congregation for the Doctrine of the Faith

In the Matter of Baby M, New Jersey Supreme Court

Infertility: Medical and Social Choices - U.S. Congress, Office of Technology Assessment

Ethics of New Reproductive Technologies: The Glover Report to the European Commission

Ethical Issues in Surrogate Motherhood: American College of Obstetricians and Gynecologists

Proceed with Care: Final Report of the Royal Commission on New Reproductive Technologies


Ethical Issues in the Changing Health Care System

The Uniform Anatomical Gift Act

Organ Transplantation: Issues and Recommendations

Canterbury v. Spence, District of Columbia

Making Health Care Decisions: The Ethical and Legal Implications of Informed Consent in the Patient-Practicioner Relationship: President's Commission

Tarasoff v. Regents of University of California, Supreme Court of California

Index