Government agencies and commissions, courts, and legislatures have during the past several decades produced reports, rendered decisions, and passed laws that have both defined the fundamental issues in the field of bioethics and established ways of managing them in our society. Providing a history of these key bioethical decisions, this Source Book in Bioethics is the first and only comprehensive collection of the critical public documents in biomedical ethics, including many hard-to-find or out-of-print materials.
Covering the period from 1947 to 1995, this volume brings together core legislative documents, court briefs, and reports by professional organizations, public bodies, and governments around the world. Sections on human experimentation, care of the terminally ill, genetics, human reproduction, and emerging areas in bioethics include such pivotal works as "The Nuremberg Code," "The Tuskegee Report," and "In the Matter of Baby M," as well less readily available documents as "The Declaration of Inuyama," the Council for International Organizations of Medical Sciences statement on genetic engineering, and "The Warnock Committee Report" on reproductive technologies from the United Kingdom. Three eminent scholars in the field provide brief introductions to each document explaining the significance of these classic sources.
This historical volume will be a standard text for courses in bioethics, health policy, and death and dying, and a primary reference for anyone interested in this increasingly relevant field.
Table of Contents
Preface
Introduction
The Ethics of Research with Human Subjects
A Short History
Albert R. Jonsen
The Nuremburg Code
Declaration of Helsinki: Recommendations Guiding Medical Doctors in Biomedical Research Involving Human Subjects
On the Protection of Human Subjects: U.S. Department of Health, Education and Welfare's Institutional Guide
The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research: National Commission
Research on the Fetus: National Commission
Research Involving Children: National Commission
Insitutional Review Boards: National Commission
Federal Regulations Regarding the Protection of Human Subjects of Research
Final Report of the Tuskegee Syphilis Study Ad Hoc Advisory Panel
Research on In Vitro Fertilization: Ethics Advisory Board DHEW
Human Fetal Tissue Transplantation Research Panel: National Institutes of Health
The Ethics of Death and Dying
Changing Attitudes Toward Death and Medicine
Robert M. Veatch
Defining Death: Medical Legal, and Ethical Issues in the Definition of Death: President's Commission
In the Matter of Karen Quinlan: The Supreme Court, State of New Jersey
The California Natural Death Act: State of California
Superintendent of Belchertown State School v. Saikewicz
Deciding to Forego Life-Sustaining Treatment: Ethical, Medical, and Legal Issues in Treatment Decisions: President's Commission
In the Matter of Claire Conroy: The Supreme Court, State of New Jersey
Cruzan v. Director, Missouri Department of Health: U.S. Supreme Court
Child Abuse and Neglect Prevention and Treatment: Final Rule in the Matter of Baby K
Ethical Issues in Human Genetics
Issues in Genetics
LeRoy Walters
Genetic Screening: Programs, Principles, and Research
Screening and Counseling for Genetic Conditions: President's Commission
Assessing Genetic Risks: Implications for Health and Social Policy: Institute of Medicine
Recommendation 934: On Genetic Engineering: Council of Europe
Splicing Life: The Social and Ethicla Issues of Genetic Engineering with Human Beings: President's Commission
NIH "Points to Consider" for Gene Therapy Researchers
Gene Therapy for Human Patients: Information for the General Public
Gene Therapy in Man: Recommendations of European Medical Research Councils
The Declaration of Inuyama: CIOMS
Mapping and Sequencing the Human Genome: National Academy of Sciences
Mapping Our Genes: The Genome Projects - How Big, How Fast?: Office of Technology Assessment
Ethical Issues Arising from Human Reproductive Technologies and Arrangements
Reading on Human Reproduction: Introduction
LeRoy Walters
HEW Support of Research Involving In Vitro Fertilization - First Interim Report of the Waller Committee, Victoria, Austrailia
Report of the Committee of Inquiry into Human Fertilisation and Embryology: The Warnock Committee, United Kingdom
Ethical Considerations of the New Reproductive Technologies: American Fertility Society
Instruction on Respect for Human Life: The Congregation for the Doctrine of the Faith
In the Matter of Baby M, New Jersey Supreme Court
Infertility: Medical and Social Choices - U.S. Congress, Office of Technology Assessment
Ethics of New Reproductive Technologies: The Glover Report to the European Commission
Ethical Issues in Surrogate Motherhood: American College of Obstetricians and Gynecologists
Proceed with Care: Final Report of the Royal Commission on New Reproductive Technologies
Ethical Issues in the Changing Health Care System
The Uniform Anatomical Gift Act
Organ Transplantation: Issues and Recommendations
Canterbury v. Spence, District of Columbia
Making Health Care Decisions: The Ethical and Legal Implications of Informed Consent in the Patient-Practicioner Relationship: President's Commission
Tarasoff v. Regents of University of California, Supreme Court of California
Index
Reviews
"In the past few decades, governments at all levels have developed a host of policies and laws that have framed the dialogue, concepts, and practice of making correct decisions on bioethical questions. Many of these documents vital to the field of bioethics are difficult to find, but this book provides easy access to the classics in the field. A very valuable resource."—Choice
"This is a 'must have' for the reference shelf."—E-Streams
"An invaluable source book for, among others, ethicists, students, health law attorneys, researchers, health care professionals, and ethics committee members."— , Bioethics Forum
Awards
Selected as an Outstanding Academic Book by Choice magazine Congratulations to Robert M. Veatch, 2008 recipient of the American Society of Bioethics and the Humanities Lifetime Achievment Award.
About the Author
Albert R. Jonsen is a professor of ethics in medicine and chairman of the Department of Medical History and Ethics at the University of Washington School of Medicine.
Robert M. Veatch is professor of medical ethics and former director of the Kennedy Institute of Ethics at Georgetown University.
LeRoy Walters is Joseph P. Kennedy Professor of Christian Ethics at the Kennedy Institute of Ethics.
